Parkinson’s patients have considerable (and mounting) unmet physical, psychosocial and spiritual needs, and experience great problems with coordination and continuity of care. The overall ambition of this project is to integrate palliative care with traditional care and suggest a new model of palliative care focused on the patient's quality of life along the entire course of disease.
This project brings together a multidisciplinary team with extensive expertise that will also develop evidence based Guidelines and a MOOC for Palliative Care in Parkinson’s Disease involving in the process experts from the European Association for Palliative Care, from the the European Academy of Neurology and from the Movement Disorders Society. The MOOC “Best Care for People with Late Stage Parkinson” will be integrated into the WHO supported interdisciplinary postgraduate palliative care curriculum.
The project participants are Universita Degli Studi Di Padova (Italy), Stichting Katholieke Universiteit (The Netherlands), PD Neurotechnology LTD (United Kingdom), Panepistimio Ioanninon (Greece), King's College London (United Kingdom), Mediolanum Cardio Research SRL (Italy), University College London (United Kingdom), Estonian Movement Disorders Society (Estonia), PMU Salzbug (Austria), Philipps Universität Marburg (Germany).
Having a population with increase life expectancy which faces progressive chronic illnesses there is necessary that future physicians receive a proper training to meet patients’ and their caregivers’ needs. The project comes as support for medicine faculties by developing and piloting a palliative care curriculum based on EAPC recommendations.
Partners in this project are: Transylvania University in Brasov, Medicine and Pharmacy University in Timisoara, Medicine and Pharmacy University in Targu-Mures, Medicine and Pharmacy University in Grigore T. Popa Iasi, Casa Sperantei Hospice in Brasov (Romania), EAPC (Belgium), RWTH Aachen University (Germany), All Ireland Institute of Hospice and Palliative Care (Ireland).The WHO Collaborating Centre at the PMU participates in this projects as an associate partner.
Currently, there is a great deal of innovation in the teaching of person-centred care that needs to be captured, shared and built upon to ensure nursing students are equipped to address the holistic needs of the people they care for. This will ensure the nursing workforce of the future is prepared to address some of the global challenges that are impacting upon international nursing and healthcare. This project has the potential to generate a rich insight into current educational practice, enable the sharing of best practice and the development of a uniform approach to how personal, religious and spiritual beliefs are incorporated into nursing curricula through the generation of guidance.
The project is led by nurse educators from six universities in Malta, the Netherlands, Norway and the UK. The WHO CC at the PMU is a multiplicator for German-speaking countries.
In 2017 PMU and EAPC launched a survey with the aim to collect information on elements of palliative care education from experts from all over Europe. The analysis revealed a high agreement regarding the existing core competencies of palliative care education. The results indicate that at post-graduate level all health care providers
- have to comprehend the palliative care philosophy
- have to be able to demonstrate the complex symptom assessment and management competencies
- have to be able to design care plans based on patients and families wishes integrating multi-professional and interdisciplinary approaches, and
- have to be able to listen and self-reflect.
Based on these findings an international group of experts have begun to draft a WHO policy paper on a multidisciplinary post-graduate palliative care education for WHO European region.